BUCKSPORT — The parents of a young boy with a rare genetic condition are hosting a benefit Color Run this Sunday.
The race starts at 9 a.m. at Bucksport High School at 102 Broadway.
Crystal and Dan Harlan’s son, Dalton, has a condition called phosphomannomutase 2-congenital disorder of glycosylation, otherwise known as PMM2-CDG, or just CDG.
Sunday’s race is intended to promote CDG Awareness.
The condition, which affects about 1,000 people worldwide, makes it difficult for Dalton to learn to walk, talk and eat.
Crystal Harlan said Dalton, at 2 years of age, is still working on sitting independently. The family is looking forward to getting Dalton a device called a “stander,” which looks like a highchair only with support for his legs and feet so he can stand.
The device also will be good for Dalton’s bones and circulation, she said.
Harlan said donations from the run will be used to purchase a swing for handicapped children to use on Ian’s Place Playground on Elm Street. Remaining funds will be donated for CDG research.
“The path for the race will be the Miles Lane Trail,” Harlan said. “We are going to start at the Bucksport High School and proceed to the trails.”
A “superhero run” for children starts at 8:30 a.m. The superhero run is free. Children are encouraged to dress up as their favorite superheros.
To register for the run, go to eventbrite.com and search for CDG awareness. If you don’t plan to participate in the 5K, you can also donate to the cause at eventbrite.
The Harlan family has ongoing trips out of state for Dalton’s medical care, including an upcoming trip to Boston Children’s Hospital for a surgery.
Harlan is a Hancock County deputy sheriff. He had been a Bucksport police officer for several years.
To that end, the Bucksport Police Department in 2016 started a gofundme page to raise money for the family’s ongoing travel, lodging and medical expenses. That gofundme page is still active for those who would like to contribute. Search “Daltons Way.”